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After a dementia diagnosis

What to do now, and what can wait.

Quick answer

Get the specific diagnosis and a care plan from the treating physician, put a durable power of attorney and health care directive in place while the person can still sign, and call Maryland Access Point to learn what local programs exist -- most decisions about placement can wait.

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Last verified: October 2026

What should a Baltimore family do in the first month after a dementia diagnosis?

Get the specific diagnosis and a care plan from the treating physician, put a durable power of attorney and health care directive in place while the person can still sign, and call Maryland Access Point to learn what local programs exist -- most decisions about placement can wait.

Baltimore has several academic memory clinics and the Alzheimer's Association's Greater Maryland chapter runs support groups across the region.

When will someone with dementia need memory care?

There is no fixed point; the usual triggers are exit-seeking or wandering, nighttime confusion that a caregiver cannot cover, and behaviors that an untrained household cannot safely manage.

Plenty of people with early dementia do well at home or in a small assisted living home with consistent staff.

How do you evaluate a Maryland memory care unit?

Ask for the OHCQ-approved written description of the Alzheimer's Special Care Unit and test the tour against it -- staffing at night, awake overnight staff, training, activities and fees.

The special care unit guide lists what the description must include.

Can Medicaid pay for dementia care in assisted living?

Yes, through the Community Options Waiver for those who meet the nursing facility level of care and financial rules, at a program that participates; the registry wait makes early planning important.

Start the registry call at diagnosis if Medicaid is likely to be needed later. Being on the registry costs nothing and commits the family to nothing; it simply starts the clock. Families who wait until savings are gone often face months of private pay they cannot cover.

Is memory loss always dementia?

No -- reversible causes are common.

Often reversibleDementia
Infections, especially urinaryProgressive decline
Medication side effects, dehydrationAlzheimer's, vascular, Lewy body, frontotemporal
Depression, hearing lossDiagnosed by evaluation over time

What legal documents should be signed after a dementia diagnosis in Maryland?

A durable financial power of attorney, a health care power of attorney or advance directive, and an updated will are the core documents, signed while the person still has capacity to understand them.

Maryland's advance directive form can name a health care agent and record treatment wishes. Add HIPAA authorizations so adult children can speak with doctors and hospitals. If long-term care Medicaid is likely, an elder law attorney can review the plan before assets are moved, because transfers in the 60 months before an application can create a penalty period.

How fast does dementia usually progress?

It varies widely by type and person; Alzheimer's often progresses over years, while other dementias can change faster, so plans should be reviewed after any hospital stay, fall or sudden change.

Keep a simple log of changes in sleep, eating, wandering and mood. Doctors and memory care admissions staff both find it useful, and it makes level-of-care conversations concrete.

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